A long afternoon in Nashville

Today we went back to see my MS specialist in Nashville to discuss my recent hospital stay and what caused it. It appears to be part of the relapse that I was having a couple weeks ago. What he told us that was very surprising is that he categorized it as mild in comparison to what could happen. I am going to continue taking Rebif injections three times a week. He told us this medication will help protect my brain and will help me to live a longer and hopefully active life. It just takes time. What he reminded us is that this is a brain and spinal cord disease and therefore is very unpredictable. I am a rule follower by nature so whatever I am told to do I will. I appreciate all of the thoughts and prayers. This is just a bump in the road and I hope the road is long because I can handle the journey.

The Best Laid Plans......

Many of you have been wondering about me since I was in the hospital last week so I wanted to give you an update. Apparently I had an episode of optic neuritis that came on very quickly. Imagine when you are so sleepy that you can't keep your eyes open, well, that was happening in just one eye and I was in the middle of a lesson about the Civil War.  I noticed that I was getting a few funny looks from the kids and I also noticed that my face was becoming numb on the right side. I went to the school nurse who promptly proceeded with some nuerological tests (smile, stick your tounge out, etc...) and the next thing I knew I was getting in an ambulance. The pain from my eye caused my blood pressure to spike to 158/108 by the time I reached the hospital. 
MS is a disease of leisons that affect different parts of the brain and sometimes the spinal cord. A great deal of my leisons are in the area of the brain that affects my vision and sometimes stress and other medications can trigger these bouts of trouble. After two and a half days in the hospital my doctor told me that a combination of medicine changes and rest would help me.  The nerve damage in my eyes is not reversable however I can help it slow down by resting more and possibly changing some of my medications.
If you know me very well rest is not a word that is common to me. Obviously being able to sense this, the doctor has ordered me to stay home from school for at least this week. I have to say this was a hard blow for me to take. I feel a great responsibility to my students and we will begin state testing in just one week.  I am going to follow the doctor's orders and I will have a few more tests and doctor visits while I am off this week, however I WILL NOT let this get me down.
I was able to enjoy tonight with my daughter Lyndsey at her 8th grade Formal. I have been planning this with a group of parents for a few months and having to be in the hospital the week of the event was not easy! I woke up this morning not knowing if I would be able to make it but God got me through.  I am thankful though for the time that I can spend with my kids right now enjoying these moments. The theme of her Formal was "You're Gonna Miss This" I think that was very fitting. I am learning to enjoy the good days and push through the hard days. Please keep praying for our family and our doctors. One last thing to remember in this update, MS is a strange disease, the patient may look great on the outside but the fight is on the inside.

Vacation?

Spring break is almost over. I was hoping for a trip this year but I got to go to Nashville to see the doctor and to Paducah for three days of steroid infusions instead. Oh well maybe next year. I was looking back and I have spent fall break, Christmas break and now this break with a needle in my arm. This time I have started to have trouble with my right eye. Hopefully the steroids will do their job. This round was a little tougher than the other two but each time I learn a little more about what I can do for myself to make it not so bad. I am determined to keep learning what I can do to make MS tolerable. The good news is that the doctor told us that younger patients have a brighter outlook as far as not becoming disabled later due to advances in medicine. Please continue to pray not just for me but for my husband and my children who have to go through this too. I am so thankful everyday for all of my blessings.

It's National MS Awareness Week!

I'm sure most of you, unless you have already had some dealings with MS in the past were not aware that this week is National MS Awareness Week, so hug someone with MS, just not too hard! It's been a long couple of weeks for me. We knew that I would be having my ovary removed soon and had planned for it to be this week however when I went in last week to get the pre op lab work done, I was in so much pain that they decided to take out the ovary a week earlier. Last Thursday I had it removed and in the process it was discovered I only had one ovary, EVER! Ha! I have had two kids and never knew. So now in addition to the MS, I am going to work through hormones. I know I can do all of this and I try really hard not to complain about my situation because there is someone, somewhere who is in a much worse condition than I....but I have to be completely honest,  that today, I locked myself in the bathroom, closed my eyes really tight and asked God to please just make my body normal when I unlocked the bathroom door. It didn't work. I try to be optimistic but I get frustrated sometimes and then I feel guilty.
What I have found that really makes me happy and helps me keep things in perspective is my students. I am not just saying that to earn brownie points with anyone, the kids really make me happy.  I love being with them, I just wish I had more energy sometimes! Several of the kids in 4th grade have approached the librarian and asked her if they could start a book club, she agreed and I asked to be a part of the club too.  I love being a part of something that is not necessarily a requirement and that kids are doing out of sheer love of an activity. I also LOVE to read and find it relaxing.  I think that things like this are what will help me through the rough spots. Of course I have my family, my husband,  parents, in-laws and wonderful children but, I have to say that my students have really been a high point in my life this year. I know that they don't really know it  but maybe in ten years I can share with one or two of them how much they helped me. 

Remember, the one thing about MS is, those of us who have it look like everyone else, we are just fighting a battle that no one else can see.  

Just an update

It has been a couple of months and I wanted to catch up with what has been going on. I first want to say that I appreciate, more than you all could ever know the prayers and thoughts and just those of you who continue to check in on me. This is a battle even if the symptoms are not always visible and if I have learned anything over the past few months is it that. I can certainly feel all of the prayers and I know that gets me through many days that I couldn't otherwise.

I had a solu medrol infusion for three days in December and while the side effects lasted a little longer than the first treatment, I have gotten over them and overall had been feeling well until about a week and a half ago.  I have been learning and self journaling about things that cause my symptoms and pain to be worse and weather changes have certainly been one of them. As you can imagine, all of this weather has wreaked havoc on me! I was also feeling some pretty severe pain in my lower abdomen, and, since this is all new to me, Aaron and I thought at first that it could just be related pain but eventually it got to the point where I felt as if I could pass out. After a LONG night in the E.R. they told us they found a cystic mass in my pelvis and sent us to a Gyno in Paducah where I was told I will be having my right ovary removed soon.

Over all, as far as the MS goes, I am tolerating the Rebif injections that I give myself three times a week and the greatest amount of pain that I have is in my legs and somedays I feel like I can't make them work to get out of bed, but I love my job and being with my students, even on the bad days is the best medicine in the world. Please continue to keep us in prayer, not just  me but my husband and children as well. They work very hard to help me so that I can have a little rest time.

Remember, March is around the corner and is national MS month, many dont know this, but just like Pink is the color for Breast Cancer and Red is for Heart Health, ORANGE is the official color for M.S. wear orange in support of a cure for this painful disease!

Another Treatment

Well, no news is usally good news so I haven't posted in a while because I have felt great. About two weeks ago I began to relapse. I started having pain and weakness in my right arm, then in my leg and some days the pain would get so bad I could hardly stand it. The pain also causes a great amount of fatigue so most days I have been completely wiped out but I wanted to push through until Christmas break because I am down to one sick day at school. I visited my doctor today anticipating the start of my three day treatment, however my veins are very weak so after 12 needle sticks, they told me they were unable to start the treatment today. Tomorrow I am supposed to go to Lourde's hospital where hopefully they will be able to start the IV. If they can't then my Dr. has ordered a PICC line to be inserted so that I can get my treatment and hopefully be on the road to getting over this relapse. Please pray for the nurses who will try to give me the treatment tomorrow. I would like to get through this and move on to the holidays! In addition to my relapse, I am getting a horrible cold and I don't have time for this! I have presents to wrap and things to finish up! Keep all of  us in your prayers!

Keepin' On

Since the last time I blogged, I have finally begun my Rebif injections. Today I took the second injection, and I will continue to take them three times a week. I am praying that this therapy will work! For those of you who are not up on your M.S. medications, Rebif is not a cure, but a therapy to slow down the progression of this disease. I am thankful for my M.S. friend Tammy, who also happens to be the mother of my friend and co-worker. Tammy was able to show me how to give myself injections and she is a wealth of information. If there is a silver lining to this disease, I hope that mine is that I am able to support someone in the future who has to endure this diagnosis.  I am supposed to be connecting with a nurse who will help with follow up education as well.
As far as how I am feeling, I woke up this morning, (Saturday) and was having trouble walking. My left leg felt like it weighed a ton and was very painful when I put any weight on it. I felt like I was dragging it behind. Most of you know that I am a pretty fast walker so that was a little frustrating. I know that fatigue and stress make this disease worse and this week probably did it! Anyone who has ever visited an elementary school on Halloween or any other holiday can tell you that it is wild! Even the days leading up to the holiday! In addition, my husband and a few friends were competing in a BBQ competition and I wanted to be able to be there to support him. I am sure that I wore myself out! I am going to try to be a little easier on myself, and know that I have to have a resting point everyday! I am learning what I can and can not do.
I want to say that I appreciate more than I can say all of the words of encouragement that I continue to get from friends and family. Encouragement and Prayers are what will see me through!